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Research Participants Needed:

Educators Invited to Join Research Study on Data Sonification

Oceanographer Amy Bower’s career spans 25 years of studying ocean currents as well as creating educational lessons. Bower, who is legally blind, is now seeking input from teachers who work with students with visual impairments to “make oceanography more accessible using sonification.” She and the research team are recruiting educators in subjects that include data, such as science, math, statistics, or social science. Participants will be asked to share how they use sound in the classroom, including for conveying “quantitative information.” Sessions will be held via Zoom. The data sonification research study is part of a National Science Foundation (NSF) collaboration between Woods Hole Oceanographic Institution, Georgia Institute of Technology, the University of Oregon, and Your Ocean Consulting, Inc. For more information, including how to participate, read the Perkins School for the Blind Paths to Technology post: Participants Needed for Research on Data Sonification.

Men with Retinitis Pigmentosa (RP) Sought for Research Survey

Are you or someone you know affected by X-linked retinitis pigmentosa (XLRP)? A research survey of males with XLRP aims to gain a better understanding of the impact of vision loss on activities of daily living and insights into “the risks and benefits of potential treatments.” The study seeks male participants because this form of RP is more common and the vision loss it causes is more severe in boys and men. The Foundation Fighting Blindness (FFB) is collaborating with the Applied Genetics Technology Corporation (AGTC) and Biogen to enlist participants in this survey. Survey results will “inform a Patient-Focused Drug Development Meeting” set to occur in mid-2022, organized by FFB and including representatives of the U.S. Food and Drug Administration and adults and parents of minors with the condition. Participants in the survey need to be at least 18 years old with XLRP, live in the U.S. and be registered in FFB’s My Retina Tracking Registry (MRTR). MRTR is a research database of individuals affected by rare inherited retinal disorders and their family members. Membership in MRTR is free. For more details about the study and how to enroll, read the article: Foundation Seeks My Retina Tracker Registry Members with X-Linked Retinitis Pigmentosa for Research Survey.